Fathers of Children Born with Cleft Lip and Palate: Impact of the Timing of Diagnosis
| Author(s) | Zeytinoğlu, Senem | |
| Author(s) | Davey, Maureen P. | |
| Author(s) | Crerand, Canice | |
| Author(s) | Fisher, Kathleen | |
| Ordered Author | Senem Zeytinoğlu Maureen P. Davey Canice Crerand Kathleen Fisher | |
| UD Author | Davey, Maureen P. | en_US |
| Date Accessioned | 2016-11-10T16:55:09Z | |
| Date Available | 2016-11-10T16:55:09Z | |
| Copyright Date | Copyright © 2016 American Psychological Association | en_US |
| Publication Date | 2016-04-21 | |
| Description | Author's final draft after peer review | en_US |
| Abstract | INTRODUCTION: Cleft lip and/or palate (CL/P) affects not just the child born with the condition but also the child’s parents. Prior research has been primarily cross-sectional, quantitative, and focused on mothers’ emotional, social, and care experiences. Fathers’ experiences have been neglected despite the important role fathers have in their child’s well-being and development. The purpose of this study was to examine how the timing of a child’s diagnosis (prenatal versus postnatal) affects how fathers cope and adapt. METHOD: We conducted a descriptive qualitative study with a convenience sample of 17 fathers and used thematic content analysis to code the interviews. The sample included ten fathers who received a prenatal diagnosis and seven who received a postnatal diagnosis. RESULTS: The following four major themes emerged: (1) first hearing the diagnosis, (2) taking care of a baby with cleft, (3) future concerns, and (4) reflections. Course of treatment, feeding and social stigma were reported as major sources of stress for all fathers. DISCUSSION: All fathers should be routinely assessed by CL/P treatment teams and included in support services. Some fathers whose babies were diagnosed at birth experienced self-blame, suggesting the importance of screening this group of fathers for distress at birth. Findings underscore the importance of family-centered approaches to care that include both mothers and fathers in treatment planning, interventions, and future research. | en_US |
| Department | University of Delaware. School of Nursing. | en_US |
| Citation | Fathers of children born with cleft lip and palate: Impact of the timing of diagnosis. Zeytinoğlu, Senem; Davey, Maureen P.; Crerand, Canice; Fisher, Kathleen Families, Systems, & Health, Vol 34(2), Jun 2016, 150-158. http://dx.doi.org/10.1037/fsh0000198 . | en_US |
| DOI | http://dx.doi.org/10.1037/fsh0000198 | en_US |
| ISSN | 1091-7527 ; e- 1939-0602 | en_US |
| URL | http://udspace.udel.edu/handle/19716/19835 | |
| Language | en_US | en_US |
| Publisher | American Psychological Association | en_US |
| dc.rights | This article may not exactly replicate the authoritative document published in the APA journal. It is not the copy of record. Copy of authors final peer-reviewed manuscript as accepted for publication Authors\' post-print on author\'s web-site, employers server or institutional repository, after acceptance | en_US |
| dc.source | Families, Systems, & Health | en_US |
| dc.source.uri | http://www.apa.org/pubs/journals/fsh/ | en_US |
| Title | Fathers of Children Born with Cleft Lip and Palate: Impact of the Timing of Diagnosis | en_US |
| Type | Article | en_US |
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