Open Access Publications
Permanent URI for this collection
Open access publications by faculty, staff, postdocs, and graduate students in the School of Nursing.
Browse
Browsing Open Access Publications by Author "Crerand, Canice"
Now showing 1 - 2 of 2
Results Per Page
Sort Options
Item Experiences of Couples Caring for a Child Born with Cleft Lip and/or Palate: Impact of the Timing of Diagnosis(Wiley for American Association for Marriage and Family Therapy, 2016-07-08) Zeytinoğlu, Senem; Davey, Maureen P.; Crerand, Canice; Fisher, Kathleen; Akyil, Yudum; Senem Zeytinoğlu Maureen P. Davey Canice Crerand Kathleen Fisher Yudum Akyil; Davey, Maureen P.Raising a child born with cleft lip and/or palate (CL/P) can be challenging for parents. Few researchers have examined how having a child born with CL/P impacts couples. The purpose of this descriptive qualitative study was to examine how a child’s CL/P diagnosis affects couples’ adjustment and their relationship. We conducted interviews with 17 couples (10 prenatal and 7 postnatal) caring for children born with CL/P. After conducting thematic content analysis, six overarching themes emerged: (1) relationship growth, (2) challenges, (3) roles and responsibilities, (4) sources of support, (5) talking about cleft, and (6) lessons learned. Findings suggest couples should be routinely assessed for psychosocial issues and prevention programs should be tailored to pre-existing stressors and timing of the diagnosis.Item Fathers of Children Born with Cleft Lip and Palate: Impact of the Timing of Diagnosis(American Psychological Association, 2016-04-21) Zeytinoğlu, Senem; Davey, Maureen P.; Crerand, Canice; Fisher, Kathleen; Senem Zeytinoğlu Maureen P. Davey Canice Crerand Kathleen Fisher; Davey, Maureen P.INTRODUCTION: Cleft lip and/or palate (CL/P) affects not just the child born with the condition but also the child’s parents. Prior research has been primarily cross-sectional, quantitative, and focused on mothers’ emotional, social, and care experiences. Fathers’ experiences have been neglected despite the important role fathers have in their child’s well-being and development. The purpose of this study was to examine how the timing of a child’s diagnosis (prenatal versus postnatal) affects how fathers cope and adapt. METHOD: We conducted a descriptive qualitative study with a convenience sample of 17 fathers and used thematic content analysis to code the interviews. The sample included ten fathers who received a prenatal diagnosis and seven who received a postnatal diagnosis. RESULTS: The following four major themes emerged: (1) first hearing the diagnosis, (2) taking care of a baby with cleft, (3) future concerns, and (4) reflections. Course of treatment, feeding and social stigma were reported as major sources of stress for all fathers. DISCUSSION: All fathers should be routinely assessed by CL/P treatment teams and included in support services. Some fathers whose babies were diagnosed at birth experienced self-blame, suggesting the importance of screening this group of fathers for distress at birth. Findings underscore the importance of family-centered approaches to care that include both mothers and fathers in treatment planning, interventions, and future research.