Open Access Publications
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Open access publications by faculty, staff, postdocs, and graduate students in the School of Nursing.
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Browsing Open Access Publications by Author "Akyil, Yudum"
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Item Experiences of Couples Caring for a Child Born with Cleft Lip and/or Palate: Impact of the Timing of Diagnosis(Wiley for American Association for Marriage and Family Therapy, 2016-07-08) Zeytinoğlu, Senem; Davey, Maureen P.; Crerand, Canice; Fisher, Kathleen; Akyil, Yudum; Senem Zeytinoğlu Maureen P. Davey Canice Crerand Kathleen Fisher Yudum Akyil; Davey, Maureen P.Raising a child born with cleft lip and/or palate (CL/P) can be challenging for parents. Few researchers have examined how having a child born with CL/P impacts couples. The purpose of this descriptive qualitative study was to examine how a child’s CL/P diagnosis affects couples’ adjustment and their relationship. We conducted interviews with 17 couples (10 prenatal and 7 postnatal) caring for children born with CL/P. After conducting thematic content analysis, six overarching themes emerged: (1) relationship growth, (2) challenges, (3) roles and responsibilities, (4) sources of support, (5) talking about cleft, and (6) lessons learned. Findings suggest couples should be routinely assessed for psychosocial issues and prevention programs should be tailored to pre-existing stressors and timing of the diagnosis.